Columbus Chapter

Thank you for visiting the Columbus Chapter of the FSH Society which officially launched in July 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

Join Us for Our Next Chapter Meeting!

Sunday, July 14th from 1-3 pm at the Nationwide Children’s Hospital’s, Center for Gene Therapy

You won’t want to miss our next Chapter meeting as there is so much to share! It’s an exciting time in the world of FSHD. The FSH Society’s President and CEO, Mark Stone, will be delivering the most current progress on the Therapeutic Accelerator. The industry Collaborative has commenced, follow-up visits with all bio pharmaceuticals will have been made, and Mark will just be returning from the International Research Congress to be held in Marseilles at the end of June! Please RSVP HERE!

The Walk & Roll  
It’s official – the 2nd annual Walk & Roll to Cure FSHD is open!!! Mark your calendars for Saturday, September 14th, 2019, at the Coffman Park Pavilion in Dublin, OH. We hope you’ll be able to join us for this awesome event where we raise awareness, build our community, and raise funds toward the cure. You can register to participate, or support our event by making a donation HERE

Until then, here are some photos from our inaugural event in 2018 to get you in the spirit:

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Check out some great photos from our Chapter meeting on Nov. 11th, 2018: 

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To contact us directly, please email:

Visit the FSH Society Events calendar to search for upcoming events in your area!

Would you like to get involved? Simply fill out the form below: