Colorado Chapter

Welcome to the Colorado Chapter!

Next Chapter Meeting: Please mark your calendars for Saturday, March 23rd for our next meeting! Location will be updated soon, and further details can be found on our Event posting here. We hope you can make it!

We officially launched our Chapter on Saturday, October 13th, 2018 with a fabulous community of patients, family members, researchers, clinicians, and friends. We hope to help patients, caregivers, and their families connect and advocate for themselves and each other.

The Walk & Roll

It’s official – The 2019 Walk & Roll to Cure FSHD is up & running! We can’t wait to celebrate our 4th annual fundraiser with you all. We have some big goals for this year, because we want a cure NOW! Please join us in this awesome event to raise awareness, build our community, and most importantly, fund the CURE for FSHD! Register to participate or support our event by making a donation HERE!

To contact us directly, please email:

Visit the FSH Society Events calendar to search for upcoming events in your area!

Would you like to get involved? Simply fill out the form below: