Colorado Chapter

Welcome to the Colorado Chapter!

We hope to help patients, caregivers, and their families connect and advocate for themselves and each other.

Chapter Launch Party
Our Chapter will officially launch on Saturday, October 13th, and we hope you can join us!! Visit our Event Page for details, and to RSVP. We can’t wait to celebrate our community!

The Walk & Roll

This year, we were proud to host our 3rd Annual Walk & Roll to Cure FSHD fundraising event! Our fundraising efforts exceeded expectations, and we raised $65,651! We are so grateful to everyone who walked, rolled, volunteered, sponsored, and donated!!

Were you at the Walk & Roll? Please share your experience with us to we can continue improving our event: Take a 3-minute survey HERE!

To contact us directly, please email:

Visit the FSH Society Events calendar to search for upcoming events in your area!

Would you like to get involved? Simply fill out the form below: