Colorado Chapter

Welcome to the Colorado Chapter!

We officially launched our Chapter on Saturday, October 13th, 2018 with a fabulous community of patients, family members, researchers, clinicians, and friends. We hope to help patients, caregivers, and their families connect and advocate for themselves and each other.

The Walk & Roll

This year, we were proud to host our 3rd Annual Walk & Roll to Cure FSHD fundraising event! Our fundraising efforts exceeded expectations, and we raised $65,651! We are so grateful to everyone who walked, rolled, volunteered, sponsored, and donated!! Finally, please Save the Date: The 4th annual Walk & Roll will take place on Saturday, September 14th, 2019!

To contact us directly, please email:

Visit the FSH Society Events calendar to search for upcoming events in your area!

Would you like to get involved? Simply fill out the form below: