Colorado Chapter

Welcome to the Colorado Chapter!

Next Chapter Meeting: Please mark your calendars for Saturday, March 23rd for our next meeting! Location will be updated soon, and further details can be found on our Event posting here. We hope you can make it!

We officially launched our Chapter on Saturday, October 13th, 2018 with a fabulous community of patients, family members, researchers, clinicians, and friends. We hope to help patients, caregivers, and their families connect and advocate for themselves and each other.

The Walk & Roll

This year, we were proud to host our 3rd Annual Walk & Roll to Cure FSHD fundraising event! Our fundraising efforts exceeded expectations, and we raised $65,651! We are so grateful to everyone who walked, rolled, volunteered, sponsored, and donated!! Finally, please Save the Date: The 4th annual Walk & Roll will take place on Saturday, September 14th, 2019!

To contact us directly, please email:

Visit the FSH Society Events calendar to search for upcoming events in your area!

Would you like to get involved? Simply fill out the form below: