Chicagoland Chapter

Hello, and welcome to the Chicagoland chapter page!

We officially launched our Chapter on October 27, 2018, with a fabulous event at Northwestern Medicine Lake Forest Hospital. We have many exciting developments planned for 2019 – stay tuned for more details!

The Walk & Roll

We have scheduled our 2019 fundraiser, the Walk & Roll to Cure FSHD! Please join us on Saturday, Sept. 14th in Citizens Park, Barrington, IL to raise awareness, build our community, and raise money toward a cure! You can register or make a donation by visiting our page HERE!


To reach us, please email:

Visit the FSH Society Events calendar to search for upcoming events in your area!

Would you like to get involved? Simply fill out the form below: