Join or Start a Chapter

There is great power in community. When we come together, each bringing our own unique strengths and skills, we inspire each other to go farther and reach higher than we can when we go it alone.

That’s what the FSH Society Chapter Program is all about!

Led by volunteers and supported by FSH Society staff, the Chapter Program is our greatest opportunity to fund more research, connect more patients, and advance more progress.

Join an existing chapter or learn about starting one in your area.

Are you?


Our goals for this program are: 

  • Patient & Family Education & Empowerment
  • Build Communities & Connectivity
  • Fundraising

Requirements of Chapters include: 

  • 2+ meetings/events per year. At least one should have an education/empowerment component. 
  • 1+ Fundraiser per year (Walk & Roll to Cure FSHD or other of your choosing)

Future Chapter Interest

If you're ready to jump in and get involved with our new Chapter program, please get in touch with us!
  • City, State