Bay Area Chapter

Welcome to the Bay Area Chapter!

Our chapter officially launched on Sunday, September 16th, 2018, at our Walk & Roll event – thank you to everyone who took part in this fabulous day! 

We are excited to announce that our region will be hosting the next FSHD Family Day Conference, held Sunday, April 28th, at the Stanford School of Medicine. We hope you’ll be able to join us! Details & registration can be found HERE. We have engaged many exciting speakers – it’s an event you won’t want to miss!

Our goal is to build a supportive community for people who have FSHD, and also keep our group in touch with the most current research. We hope to build a community that will grow in number, as well as getting to know each other better. 

To contact us directly, please email:

Visit the FSH Society Events calendar to search for upcoming events in your area!

Please join us! Become a member of our Chapter here: