Bay Area Chapter

Thank you for visiting the Bay Area Chapter of the FSH Society which officially launched in September 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

Our Next Chapter Meeting is August 11th!

Join us for our next Chapter Support Group Meeting at the Stanford University Medical Center. To RSVP for this event or find additional details, please visit our event page.

The Walk & Roll

It’s official – The 2019 Walk & Roll to Cure FSHD is up & running! We can’t wait to celebrate our 4th annual fundraiser with you all. We have some big goals for this year, because we want a cure NOW! Please join us in this awesome event to raise awareness, build our community, and most importantly, fund the CURE for FSHD! Register to participate or support our event by making a donation HERE!


To contact us directly, please email:

Visit the FSH Society Events calendar to search for upcoming events in your area!

Please join us! Become a member of our Chapter here: