Bay Area Chapter

Welcome to the Bay Area Chapter!

This chapter was founded by Kent & Sue Drescher. Our chapter officially launched on Sunday, September 16th, 2018, at our Walk & Roll event – thank you to everyone who took part in this fabulous day! Our goal is to build a supportive community for people who have FSHD, and also keep our group in touch with the most current research. We hope to build a community that will grow in number, as well as getting to know each other better.

The Walk & Roll

It’s official – The 2019 Walk & Roll to Cure FSHD is up & running! We can’t wait to celebrate our 4th annual fundraiser with you all. We have some big goals for this year, because we want a cure NOW! Please join us in this awesome event to raise awareness, build our community, and most importantly, fund the CURE for FSHD! Register to participate or support our event by making a donation HERE!


Chapter Support Group Meeting

Our next Bay Area chapter meeting will be on Sunday, May 19, 2019 from 1 to 3 PM in the Hoover Pavilion at Stanford: 211 Quarry Road, 2nd floor, Room 208 – Palo Alto

We hope you can join us for this friendly, confidential meeting where you can share and learn from one another about local resources, tips and tricks for coping with the physical and psychological challenges, and offer and receive support. Find meeting details here!

To contact us directly, please email:

Visit the FSH Society Events calendar to search for upcoming events in your area!

Please join us! Become a member of our Chapter here: