Bay Area Chapter

Welcome to the Bay Area Chapter!

Our chapter officially launched on Sunday, September 16th, 2018, at our Walk & Roll event – thank you to everyone who took part in this fabulous day! 

Our goal is to build a supportive community for people who have FSHD, and also keep our group in touch with the most current research. We hope to build a community that will grow in number, as well as getting to know each other better. 

To contact us directly, please email:

Visit the FSH Society Events calendar to search for upcoming events in your area!

Please join us! Become a member of our Chapter here: