Thank you for visiting the Bay Area Chapter of the FSHD Society which officially launched in September 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
It’s official – The 2019 Walk & Roll to Cure FSHD is up & running! We can’t wait to celebrate our 4th annual fundraiser with you all. We have some big goals for this year, because we want a cure NOW! Please join us in this awesome event to raise awareness, build our community, and most importantly, fund the CURE for FSHD! Register to participate or support our event by making a donation HERE!
To contact us directly, please email: BayAreaChapter@fshsociety.org.
Visit the FSHD Society Events calendar to search for upcoming events in your area!
Don’t forget to follow us on FACEBOOK!
Please join us! Become a member of our Chapter here: