Atlanta Chapter

Welcome to the Atlanta Chapter page! 

This chapter was founded by Jack Gerblick in October 2018 and officially launched the chapter on Sunday, October 14th with a fabulous event – thanks to everyone who was able to join us! Please join our chapter below to stay in touch, and receive updates about future events and plans!

The goals of the Chapter Program here in the Greater Atlanta area are to:

  • Increase awareness and educate families throughout Georgia.
  • Help build connections among patients, care givers, health care providers and others affected by this disease.
  • Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSH.
  • Last but not least let’s HAVE SOME FUN while we accomplish these goals!

King & Queen Building Lighting Event on Thursday, June 20th

Please join us in celebrating World FSHD Day! We are excited to announce that the King & Queen buildings will be lit up Orange to spread awareness of FSH Muscular Dystrophy. The Atlanta Chapter invites you to join us for a Watch Party! The lighting is scheduled to turn on at 7:30pm. Find details on the event here!

Walk & Roll

Our first Walk & Roll to Cure FSHD will take place on Sunday, September 29th, 2019 in Roswell, GA at the Chattahoochee Nature Center Ben Brady Lakeside Pavilion. JOIN US! You can register to participate or support the event by making a donation HERE!

To contact us directly, please email:

Visit the FSH Society Events calendar to search for upcoming events in your area!

Please join us! Simply fill out the form below to become a member of the Atlanta chapter: