Atlanta Chapter

Thank you for visiting the Atlanta Chapter of the FSHD Society which officially launched in October 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

The goals of the Chapter Program here in the Greater Atlanta area are to:

  • Increase awareness and educate families throughout Georgia.
  • Help build connections among patients, care givers, health care providers and others affected by this disease.
  • Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSH.
  • Last but not least let’s HAVE SOME FUN while we accomplish these goals!

Walk & Roll

Our first Walk & Roll to Cure FSHD will take place on Sunday, September 29th, 2019 in Roswell, GA at the Chattahoochee Nature Center Ben Brady Lakeside Pavilion. JOIN US! You can register to participate or support the event by making a donation HERE!

To contact us directly, please email:

Visit the FSHD Society Events calendar to search for upcoming events in your area!

Don’t forget to follow us on FACEBOOK!

Please join us! Simply fill out the form below to become a member of the Atlanta chapter: