Arizona Chapter

Welcome to the Arizona chapter page! 

We officially launched our chapter on Saturday, August 18th in Tucson. We are now putting together our plan for 2019 – stay tuned!

We hope you’ll be able to join us for our upcoming Chapter meeting on Saturday, April 6th 2019, in Gilbert, AZ. Please visit our Event Page for additional details & to RSVP! 

We hope to help patients, caregivers, and their families connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

To contact us directly, please email:

Visit the FSH Society Events calendar to search for upcoming events in your area!

Please join us! Simply fill out the form below to become a member of the Arizona chapter: