Arizona Chapter

Welcome to the Arizona chapter page! 

We officially launched our chapter on Saturday, August 18th in Tucson. We are now putting together our plan for 2019 – stay tuned!

We hope to help patients, caregivers, and their families connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

To contact us directly, please email:

Visit the FSH Society Events calendar to search for upcoming events in your area!

Please join us! Simply fill out the form below to become a member of the Arizona chapter: