Our new FSHD 101 video

Our new video explains the basic facts about facioscapulohumeral muscular dystrophy–the symptoms, how it affects those who have it, how it is inherited, and how many people are affected. Watch it and share it to help educate others about FSH muscular dystrophy. Thank you to Taylor Toole for compiling this video. Image and video credits: … Read more of “Our new FSHD 101 video” »

World FSHD Day backstory

Italian brothers’ ordeal sparks a global movement As we approach our third annual World FSHD Day this June 20th, and the international FSHD community plans to flood their social channels with messages and images to bring attention to the day, we’d like to share the backstory of how June 20 came to be World FSHD … Read more of “World FSHD Day backstory” »

FSH Society Announces Third Annual World FSHD Day, Taking Place on June 20, 2018

The FSH Society is excited to celebrate the Third Annual World FSHD Day and join the global effort to raise awareness to FSHD on June 20, 2018. To build on our successes of the past two years, we’re calling upon you—our biggest supporters—to spread the word! We ask that you join us along with members … Read more of “FSH Society Announces Third Annual World FSHD Day, Taking Place on June 20, 2018” »