Charity Navigator rates FSH Society as “Exceptional”

The FSH Society has earned its tenth consecutive 4-star Charity Navigator rating! According to Michael Thatcher, President & CEO of Charity Navigator, “Only 1% of the charities we rate have received at least 10 consecutive 4-star evaluations, indicating that FSH Society outperforms most other charities in America. This “Exceptional” designation from Charity Navigator differentiates FSH … Read more of “Charity Navigator rates FSH Society as “Exceptional”” »

Blazing a Trail to the Future

You inspire me! You have faithfully supported, worked, and engaged your network and loved ones to join our quest for treatments and a cure for FSHD. I want to acknowledge our deep appreciation for your past support and generosity. Many of the advancements of this year would not have been possible without you. It has … Read more of “Blazing a Trail to the Future” »

An undeniable sense of optimism

In this interview, Dr. Jeffery Statland of the University of Kansas Medical Center explains how FSH Society funding seeded the creation of the seven-site Clinical Trial Research Network (CTRN), which in turn led to the largest clinical trial preparedness study that has ever been run in the United States. We have entered a convergence zone―a … Read more of “An undeniable sense of optimism” »

A comedian’s worst nightmare

Watch what happens with this famous Dutch comedian performs before an audience of people with facioscapulohumeral muscular dystrophy.  Did you notice confidence and determination of these patients and families, boldly demanding recognition and action on FSHD? We know the direction we need to go. That’s why you can donate with confidence to the FSH Society’s … Read more of “A comedian’s worst nightmare” »

#GivingTuesday 2017 is Just Around the Corner!

Join us on Tuesday, November 28th, 2017 as we participate in the 6th annual #GivingTuesday! #GivingTuesday is a global day of giving fueled by social media and collaboration following the widely recognized shopping days of Black Friday and Cyber Monday. Known as the unofficial kickoff to the giving season, every year philanthropies are celebrated and communities … Read more of “#GivingTuesday 2017 is Just Around the Corner!” »

With a Sense of Urgency

When Katie Ruekert reached out to the FSH Society, she discovered that by connecting with others with facioscapulohumeral muscular dystrophy (FSHD), she gained a new sense of purpose. Her husband Tom says, “She’s taken a lot of that fear and depression and turned it into something really good.” After months of thinking about what kind … Read more of “With a Sense of Urgency” »

FSH Society Talk Radio – Max Adler is our November guest!

Wednesday November 29, 2017, 9:00 pm EST/8:00 pm CST. Tune in live or listen to the post-show recorded podcast HERE. We are thrilled to welcome actor Max Adler, FSH Society honorary board member and advocate. The 31-year-old film and television actor first achieved national recognition for his role as Dave Karofsky on the hit television series … Read more of “FSH Society Talk Radio – Max Adler is our November guest!” »

We’ve earned our 2017 Great Nonprofits badge!

Sincere thanks to our members who reviewed the performance of the FSH Society and helped us earn our fifth consecutive Top-rated Great Nonprofits badge! We work hard for all of you, and it inspires our team to redouble our efforts when you give us so much encouragement! Thank you!

Super Bowl ticket auction!

We are holding a virtual auction for two pairs of tickets (4 total) to Super Bowl 52, which takes place at U.S. Bank Stadium in Minneapolis, Minnesota on February 4th, 2018. These tickets are being provided by our connection at NFL Films. The exact seat locations will be known about two weeks before the game. … Read more of “Super Bowl ticket auction!” »