Forget Me Knot Fundraiser, Extended until September 15th!!

UPDATED! Thank you to everyone who donated to Michelle’s Forget Me Knot fundraising campaign. We didn’t quite reach our $50,000 goal, so Michelle has extended the deadline to donate to September 15th!! We are so grateful to Michelle and Dave Mackay’s matching gift offer, and for this opportunity for more of us to rise to the challenge! … Read more of “Forget Me Knot Fundraiser, Extended until September 15th!!” »

Fourth Annual Songs in the Key of Steven Blier (PHOTOS)

” order_by=”sortorder” order_direction=”ASC” returns=”included” maximum_entity_count=”500″] We had a wonderful Bay Area FSHD Family Day conference with speakers from Stanford, UC Davis, University of Nevada Reno, followed by a lovely gala auction and concert featuring the luminous Amanda Lynn Bottoms and Dimitri Katotakis, singing their hearts out with our beloved Steven Blier. Thank you to all … Read more of “Fourth Annual Songs in the Key of Steven Blier (PHOTOS)” »

Our San Francisco Concert and Patient Meeting is right around the corner!

Join us for our annual San Francisco Concert and Conference, given in memory of Joyce Hakansson. Don’t miss our FSHD Family Day Conference and Songs in the Key of Steven Blier benefit concert on Saturday, July 15, at San Francisco’s Jewish Cultural Center. This is the Bay Area’s premier FSHD networking and advocacy event! Our conference provides an exceptional … Read more of “Our San Francisco Concert and Patient Meeting is right around the corner!” »