Not Your Mother’s Yarn

FSH member Kathy Senecal will be fundraising for the FSH Society in the coming months at four different craft fairs through her business, Not Your Mother’s Yarn.  100% of the net proceeds will be donated to the FSH Society. Kathy offers a large selection of hand-spun yarns, as well as hats, snoods, fingerless gloves, and … Read more of “Not Your Mother’s Yarn” »

Relive Team FSHD Cycling’s Race Across America!

Check out this amazing video of Team FSHD Cycling’s epic race this summer. Huge thank you to Emily Pollock for creating this priceless documentary. Warning: Have a box of tissues handy! 

Forget Me Knot Fundraiser, Extended until September 15th!!

UPDATED! Thank you to everyone who donated to Michelle’s Forget Me Knot fundraising campaign. We didn’t quite reach our $50,000 goal, so Michelle has extended the deadline to donate to September 15th!! We are so grateful to Michelle and Dave Mackay’s matching gift offer, and for this opportunity for more of us to rise to the challenge! … Read more of “Forget Me Knot Fundraiser, Extended until September 15th!!” »

FSH Society Talk Radio – A chat with Chris Carrino, voice of the Brooklyn Nets

Wednesday, May 31, 2017. 10:00 pm EST / 9:00 pm CST. LISTEN HERE! Chris is the voice of the NBA’s Brooklyn Nets and as founder of the Chris Carrino Foundation, an outspoken advocate for FSH muscular dystrophy. We will hear his story—how he embarked on his career as a sports broadcaster, keys to success in … Read more of “FSH Society Talk Radio – A chat with Chris Carrino, voice of the Brooklyn Nets” »