Talk Radio: From finance to fashion with Curt Calder

Join us on June 27th, 9:00 PM EST / 8:00 PM CST for a live, on-air interview with Curt Calder, co-founder of AnsonCalder, a leather accessories company that weds artisan materials and fine craftsmanship with minimalist, functional designs inspired by his experiences as a busy finance professional living with FSH muscular dystrophy. You can stream the show … Read more of “Talk Radio: From finance to fashion with Curt Calder” »

World FSHD Day backstory

Italian brothers’ ordeal sparks a global movement As we approach our third annual World FSHD Day this June 20th, and the international FSHD community plans to flood their social channels with messages and images to bring attention to the day, we’d like to share the backstory of how June 20 came to be World FSHD … Read more of “World FSHD Day backstory” »

Moving toward well-being

Muscular dystrophy is a part of me, but it does not have me by DAVID YOUNGER, PhD Austin, Texas I was diagnosed with FSHD when I was about four, at the same time my mother and grandmother were diagnosed. The only symptoms I had at that point were that I slept with my eyes partially closed and a … Read more of “Moving toward well-being” »

FSHD Connect pre-conference workshop: A Mindful Way through FSHD

Flamingo Las Vegas, Carson City ballrooom Saturday, June 9, 2018 9:30-11:00 AM PST An experiential workshop for patients, family members, and friends for managing stress, illness, and disability. This is being offered as a pre-conference activity of the 2018 FSHD Connect. If you wish to attend, RSVP to Robyn O’Leary at robyn.oleary@fshsociety.org. Thank you! You … Read more of “FSHD Connect pre-conference workshop: A Mindful Way through FSHD” »

Has the Design for All moment arrived?

The movement for universal design–clothing, furniture, medical devices, housewares, and architecture that are accessible, beautiful, and nonstigmatizing–is gaining steam, enough to warrant an exhibition at the Cooper Hewitt Smithsonian Design Museum, as reported by the New York Times. These companies and their products deserve support and recognition by our community. We would love to compile … Read more of “Has the Design for All moment arrived?” »