$133,254 awarded to FSHD Clinical Trials Research Network

The FSH Society has awarded a grant for a second year of support for the FSHD Clinical Trials Research Network (CTRN), through the coordinating center based at the University of Kansas Medical Center, Fairway, Kansas. In awarding the grant, the Society notes the value of having a standing, research and trial-ready infrastructure for FSH muscular … Read more of “$133,254 awarded to FSHD Clinical Trials Research Network” »

Job opening: Postdoctoral researcher for Sverdrup lab

Fran Sverdrup, PhD, at the Saint Louis University School of Medicine is recruiting a qualified scientist for the position of POSTDOCTORAL FELLOW in Muscular Dystrophy Drug Discovery. OBJECTIVES: The Postdoctoral Fellow will be part of a team focused on target identification and validation in facioscapulohumeral muscular dystrophy (FSHD). He/she will apply expertise in cell and molecular biology to … Read more of “Job opening: Postdoctoral researcher for Sverdrup lab” »

2018 FSHD Connect Conference registration is now open!

Our community’s premier networking event for immersive learning and community building Our biennial FSHD Connect Conference is an amazing opportunity to meet hundreds of patients and families, as our leading thinkers share the latest in medical management of FSHD and exciting advances toward treatments. Breakout sessions will cover how to cope with practical and emotional … Read more of “2018 FSHD Connect Conference registration is now open!” »

Duchenne/Becker and FSH Muscular Dystrophies Receive ICD-10 Codes

Parent Project Muscular Dystrophy, FSH Society Lead Effort to Obtain Critical Diagnostic Classification Standard HACKENSACK, N.J., Dec. 7, 2017 /PRNewswire-USNewswire/ — Parent Project Muscular Dystrophy (PPMD), along with collaborators the FSH Society and the Foundation to Eradicate Duchenne (FED), are pleased to announce that the nominations to create more specific ICD-10 codes for Duchenne/Becker muscular … Read more of “Duchenne/Becker and FSH Muscular Dystrophies Receive ICD-10 Codes” »

Nearly $1.2 million committed in 2017 to FSH muscular dystrophy research

The FSH Society has awarded grants totaling $616,467 to seven research projects submitted during the February 2017 grant cycle. This brings the Society’s total new research commitments to $1,167,260 for the year. Reviewed by the Society’s world-class Scientific Advisory Board, these cutting-edge projects will help to accelerate the development of treatments. Michael Kyba’s project will carry … Read more of “Nearly $1.2 million committed in 2017 to FSH muscular dystrophy research” »

We’ve earned our 2017 Great Nonprofits badge!

Sincere thanks to our members who reviewed the performance of the FSH Society and helped us earn our fifth consecutive Top-rated Great Nonprofits badge! We work hard for all of you, and it inspires our team to redouble our efforts when you give us so much encouragement! Thank you!