FSH Society Announces Third Annual World FSHD Day, Taking Place on June 20, 2018

The FSH Society is excited to celebrate the Third Annual World FSHD Day and join the global effort to raise awareness to FSHD on June 20, 2018. To build on our successes of the past two years, we’re calling upon you—our biggest supporters—to spread the word! We ask that you join us along with members … Read more of “FSH Society Announces Third Annual World FSHD Day, Taking Place on June 20, 2018” »

Walk Pioneers Lead the Way!

This September and early October, the FSH Society will host its new signature fundraising event, the Walk & Roll to Cure FSHD in five communities from coast to coast.  These Volunteer Leaders are paving the way for their communities to raise funds and increase awareness! 5 Brave Walk Pioneers have agreed to attend monthly training sessions, beta-test … Read more of “Walk Pioneers Lead the Way!” »

Seeking nominations for 2018 FSH Society Community Award

The FSH Society is soliciting nominations for its 2018 Community Award, for an individual or group that has been an outstanding contributor to the FSHD community. Given every two years, the Community Award in 2016 recognized David Housman, chair of the FSH Society’s scientific advisory board, and Chris Stenmon, former treasurer and fundraising leader for … Read more of “Seeking nominations for 2018 FSH Society Community Award” »

$133,254 awarded to FSHD Clinical Trials Research Network

The FSH Society has awarded a grant for a second year of support for the FSHD Clinical Trials Research Network (CTRN), through the coordinating center based at the University of Kansas Medical Center, Fairway, Kansas. In awarding the grant, the Society notes the value of having a standing, research and trial-ready infrastructure for FSH muscular … Read more of “$133,254 awarded to FSHD Clinical Trials Research Network” »