Nearly $1.2 million committed in 2017 to FSH muscular dystrophy research

The FSH Society has awarded grants totaling $616,467 to seven research projects submitted during the February 2017 grant cycle. This brings the Society’s total new research commitments to $1,167,260 for the year. Reviewed by the Society’s world-class Scientific Advisory Board, these cutting-edge projects will help to accelerate the development of treatments. Michael Kyba’s project will carry … Read more of “Nearly $1.2 million committed in 2017 to FSH muscular dystrophy research” »

We’ve earned our 2017 Great Nonprofits badge!

Sincere thanks to our members who reviewed the performance of the FSH Society and helped us earn our fifth consecutive Top-rated Great Nonprofits badge! We work hard for all of you, and it inspires our team to redouble our efforts when you give us so much encouragement! Thank you!

A new DUX4 mouse with muscle disease

The FSH muscular dystrophy scientific literature finally has a publication describing a genetic mouse model that develops skeletal muscle disease. This work comes via the laboratory of Michael Kyba, PhD, at the University of Minnesota’s Lillehei Heart Institute. This murine model, called iDUX4 pA, has a number of compelling similarities to the human disease. Ever … Read more of “A new DUX4 mouse with muscle disease” »

Super Bowl ticket auction!

We are holding a virtual auction for two pairs of tickets (4 total) to Super Bowl 52, which takes place at U.S. Bank Stadium in Minneapolis, Minnesota on February 4th, 2018. These tickets are being provided by our connection at NFL Films. The exact seat locations will be known about two weeks before the game. … Read more of “Super Bowl ticket auction!” »

Tips for air travel with a power wheelchair

Howard Chabner, a lawyer, disabilities advocate, and long-time FSH Society Board member, loves to travel internationally and has much experience with addressing the innumerable obstacles that impeded disabled travelers. He has compiled an extensive guide to air travel with a power wheelchair, which we are pleased to share with our readers. Download here: Tips for air … Read more of “Tips for air travel with a power wheelchair” »

FSH Society Board of Directors Names Mark A. Stone as Next Chief Executive Officer

Co-founder and Former CEO Daniel Paul Perez to continue with the FSH Society as Chief Science Officer LEXINGTON, Massachusetts – William R. Lewis Sr. M.D., chairman of the Board of Directors of the FSH Society, today announced that Mark A. Stone has been named president and chief executive officer of the 501(c)(3) non-profit after a … Read more of “FSH Society Board of Directors Names Mark A. Stone as Next Chief Executive Officer” »

FSH Society awards over $600K for new research

The FSH Society has awarded grants totaling $616,467 to seven research projects submitted for the February 2017 grant cycle. This brings total research funding by the Society for 2017 to $1,167,260.  To learn more about the projects that are receiving this new support, visit Grants We have Funded.