Has the Design for All moment arrived?

The movement for universal design–clothing, furniture, medical devices, housewares, and architecture that are accessible, beautiful, and nonstigmatizing–is gaining steam, enough to warrant an exhibition at the Cooper Hewitt Smithsonian Design Museum, as reported by the New York Times. These companies and their products deserve support and recognition by our community. We would love to compile … Read more of “Has the Design for All moment arrived?” »

FSH Society Talk Radio with Dr. Tahseen Mozaffar

Join us on Wednesday, February 28, 2018, at 9:00 pm  EST. Listen live on BlogTalkRadio, or listen and ask questions on the air by calling (949) 270-5953. On this episode of FSH Society Talk Radio, we welcome Tahseen Mozaffar MD. Dr. Mozaffar is director of the MDA ALS Neuromuscular Center at the University of California Irvine Medical Center. As a nationally recognized … Read more of “FSH Society Talk Radio with Dr. Tahseen Mozaffar” »

Why have an annual check-up?

Many people with FSHD do not see a neuromuscular doctor regularly. Told that there is no treatment, they wonder, “What’s the point?” In this video, Jeffrey Statland MD explains why a yearly visit is important. First, the doctor can check to make sure symptoms have not gotten significantly worse since the last visit. With a … Read more of “Why have an annual check-up?” »

The Physiatrist’s role in managing FSH muscular dystrophy

Many of us have never heard of this field of medicine, but physiatrists are a very important resource for FSHD patients. In this video, Dr. Susan Keeshin of Shirley Ryan Ability Lab in Chicago, one of the nation’s leading rehabilitation center, introduces the field of physiatry for FSH muscular dystrophy patients. Dr. Keeshin says that … Read more of “The Physiatrist’s role in managing FSH muscular dystrophy” »

Job opening: Postdoctoral researcher for Sverdrup lab

Fran Sverdrup, PhD, at the Saint Louis University School of Medicine is recruiting a qualified scientist for the position of POSTDOCTORAL FELLOW in Muscular Dystrophy Drug Discovery. OBJECTIVES: The Postdoctoral Fellow will be part of a team focused on target identification and validation in facioscapulohumeral muscular dystrophy (FSHD). He/she will apply expertise in cell and molecular biology to … Read more of “Job opening: Postdoctoral researcher for Sverdrup lab” »

Facio selects first series of potential drug development candidates

We are sharing this news release from Facio, the Netherlands-based biotech founded by FSHD advocates and business leaders with the sole mission of developing treatments for FSHD. In this story, Facio announces that it has identified drug-like molecules that show promise in repressing DUX4, the gene believed to be a key driver of the disease. … Read more of “Facio selects first series of potential drug development candidates” »