Testosterone and human growth hormone clinical trial for FSHD

Researchers at the University of Rochester in Rochester, New York, are looking for individuals with FSH muscular dystrophy who are interested in participating in a research study to learn more about a potential symptomatic therapy for FSHD. This study may help determine if a combination of drugs (recombinant human growth hormone [rHGH] and testosterone) can … Read more of “Testosterone and human growth hormone clinical trial for FSHD” »

An FSHD Antisense Therapy Primer

Q&A With Dr. Yi-Wen Chen by JIM ALBERT, Eldersburg, Maryland Antisense therapy is a form of treatment for genetic disorders. In the past year antisense drugs have been approved by the FDA for the treatment of two types of muscular dystrophies: some forms of Duchenne muscular dystrophy, and spinal muscular atrophy. While antisense therapy for the … Read more of “An FSHD Antisense Therapy Primer” »

Not Your Mother’s Yarn

FSH member Kathy Senecal will be fundraising for the FSH Society in the coming months at four different craft fairs through her business, Not Your Mother’s Yarn.  100% of the net proceeds will be donated to the FSH Society. Kathy offers a large selection of hand-spun yarns, as well as hats, snoods, fingerless gloves, and … Read more of “Not Your Mother’s Yarn” »

Ask the Physical Therapist series

Our blog series of Q&As with physical therapist Julie Hershberg contain so many useful tips that we thought it would be helpful to index them all in one place. Bookmark this post so you’ll have it at your fingertips! Inversion tables, trigger points, and chronic pain management Car Accidents and FSHD Zero-Gravity Treadmills, Strength Training, … Read more of “Ask the Physical Therapist series” »

Tips for air travel with a power wheelchair

Howard Chabner, a lawyer, disabilities advocate, and long-time FSH Society Board member, loves to travel internationally and has much experience with addressing the innumerable obstacles that impeded disabled travelers. He has compiled an extensive guide to air travel with a power wheelchair, which we are pleased to share with our readers. Download here: Tips for air … Read more of “Tips for air travel with a power wheelchair” »