Last 2017 Watch is out!

Our last Watch issue of 2017 is available now! Highlights include: Team FSHD Cycling participating in the 36th Race Across America An introduction to new FSH Society CEO, Mark Stone San Francisco FSHD Family Day Human growth hormone and testosterone as a potential treatment for FSHD A new genetic mouse model for testing FSHD treatments … Read more of “Last 2017 Watch is out!” »

Blazing a Trail to the Future

You inspire me! You have faithfully supported, worked, and engaged your network and loved ones to join our quest for treatments and a cure for FSHD. I want to acknowledge our deep appreciation for your past support and generosity. Many of the advancements of this year would not have been possible without you. It has … Read more of “Blazing a Trail to the Future” »

Thank you

It is because of your donations and support that we are advancing towards treatments and healthier lives for everyone with FSH muscular dystrophy.  This Thanksgiving, we are grateful for you and the difference you are making in countless lives.   With gratitude from the FSH Society Team,

Not Your Mother’s Yarn

FSH member Kathy Senecal will be fundraising for the FSH Society in the coming months at four different craft fairs through her business, Not Your Mother’s Yarn.  100% of the net proceeds will be donated to the FSH Society. Kathy offers a large selection of hand-spun yarns, as well as hats, snoods, fingerless gloves, and … Read more of “Not Your Mother’s Yarn” »

Our San Francisco Concert and Patient Meeting is right around the corner!

Join us for our annual San Francisco Concert and Conference, given in memory of Joyce Hakansson. Don’t miss our FSHD Family Day Conference and Songs in the Key of Steven Blier benefit concert on Saturday, July 15, at San Francisco’s Jewish Cultural Center. This is the Bay Area’s premier FSHD networking and advocacy event! Our conference provides an exceptional … Read more of “Our San Francisco Concert and Patient Meeting is right around the corner!” »

World FSHD T-shirts are here!

World FSHD Day is right around the corner and we know you want to be ready to raise awareness.  The Society’s World FSHD Day t-shirts are here in the official color: orange.  Get into the spirit of World FSHD Day however you can!  Get creative!  Paint your nails orange, put up orange lights near your … Read more of “World FSHD T-shirts are here!” »