Testosterone and human growth hormone clinical trial for FSHD

Researchers at the University of Rochester in Rochester, New York, are looking for individuals with FSH muscular dystrophy who are interested in participating in a research study to learn more about a potential symptomatic therapy for FSHD. This study may help determine if a combination of drugs (recombinant human growth hormone [rHGH] and testosterone) can … Read more of “Testosterone and human growth hormone clinical trial for FSHD” »

An FSHD Antisense Therapy Primer

Q&A With Dr. Yi-Wen Chen by JIM ALBERT, Eldersburg, Maryland Antisense therapy is a form of treatment for genetic disorders. In the past year antisense drugs have been approved by the FDA for the treatment of two types of muscular dystrophies: some forms of Duchenne muscular dystrophy, and spinal muscular atrophy. While antisense therapy for the … Read more of “An FSHD Antisense Therapy Primer” »

Ask the Physical Therapist series

Our blog series of Q&As with physical therapist Julie Hershberg contain so many useful tips that we thought it would be helpful to index them all in one place. Bookmark this post so you’ll have it at your fingertips! Inversion tables, trigger points, and chronic pain management Car Accidents and FSHD Zero-Gravity Treadmills, Strength Training, … Read more of “Ask the Physical Therapist series” »

Tips for air travel with a power wheelchair

Howard Chabner, a lawyer, disabilities advocate, and long-time FSH Society Board member, loves to travel internationally and has much experience with addressing the innumerable obstacles that impeded disabled travelers. He has compiled an extensive guide to air travel with a power wheelchair, which we are pleased to share with our readers. Download here: Tips for air … Read more of “Tips for air travel with a power wheelchair” »

FSH Society Board of Directors Names Mark A. Stone as Next Chief Executive Officer

Co-founder and Former CEO Daniel Paul Perez to continue with the FSH Society as Chief Science Officer LEXINGTON, Massachusetts – William R. Lewis Sr. M.D., chairman of the Board of Directors of the FSH Society, today announced that Mark A. Stone has been named president and chief executive officer of the 501(c)(3) non-profit after a … Read more of “FSH Society Board of Directors Names Mark A. Stone as Next Chief Executive Officer” »