Our Staff

Mark Stone, FSH Society CEO

Mark A. Stone

Chief Executive Officer

Mark A. Stone has served as an executive leader of research-focused patient advocacy nonprofit organizations for the past 13 years. Prior to joining the FSH Society, he was the chief executive officer of NephCure Kidney International. During his tenure at NephCure, Stone launched the NephCure Accelerating Cures Institute (NACI), a drug discovery initiative anchored by … Read more of “Mark A. Stone” »

Jamshid Arjomand, PhD

Chief Science Officer

Jamshid Arjomand is a neuroscientist with more than 15 years of pharmaceutical and biotechnology experience in chronic pain, neurodegeneration, neuromuscular disorders and human stem cell disease modeling. He comes to the FSH Society from Genea Biocells, a San Diego-based biotechnology company where he served for five years as Vice President of Business Development. At Genea, … Read more of “Jamshid Arjomand, PhD” »

June Kinoshita

Chief Strategic Programs Officer

June Kinoshita, Chief Strategic Programs Officer, joined the FSH Society in 2012 and served as its Executive Director until September of 2017. Previously, June co-founded and served as Executive Editor of the Alzheimer Research Forum, the pre-eminent Web community for researchers in neurodegenerative disorders. June has worked closely with a variety of foundations to develop initiatives … Read more of “June Kinoshita” »

Lisa Schimmel

Lisa C. Schimmel

Chief Financial Officer

Lisa C. Schimmel, Chief Financial Officer, joined the FSH Society in April 2016.  Lisa is a CPA and has a wealth of experience in small to medium size non-profits as well as for-profit companies.  She brings to the FSH Society her expertise in accounting, reporting, and strategic planning.  Prior to joining the FSH Society, she … Read more of “Lisa C. Schimmel” »

Beth Johnston

Chief Community Development Officer

Beth Johnston, Chief Community Development Officer, joined the FSH Society in August of 2016 to assist the Executive Director and the leadership team to create, execute and grow the Society’s fundraising plan and ongoing efforts. Her long history with the Society includes fundraising, Board membership, and grant writing. She will continue her commitment to raising … Read more of “Beth Johnston” »

Daniel Perez

Daniel Paul Perez


Daniel Paul Perez is one of the nation’s leading advocates and experts on living with facioscapulohumeral muscular dystrophy (FSHD), FSHD molecular and genetics research, and clinical aspects of the disease. Daniel established the Society in 1987 after meeting fellow FSHD patient and Society co-founder, Stephen Jacobsen. Daniel developed the by-laws of the Society, incorporated the … Read more of “Daniel Paul Perez” »

Mikell Lang

Program Manager

Mikell Lang, Program Manager, joined the FSH Society in July 2019.  Mikell has been in the conference and events industry for 14+ years. Her background includes work in the non-profit and for-profit sector in a variety of capacities on both small and large conferences, educational events, and trade shows.  Prior to joining the FSH Society, … Read more of “Mikell Lang” »

Anna Gilmore

Regional Director

Anna Gilmore, Regional Director, joined the FSH Society in March 2018. She comes to the organization from Northeastern University, where she worked in the City & Community Affairs division for the last 7 years. Her projects there included implementing co-curricular volunteering programs, and facilitating student leadership development and training with a focus on civic engagement … Read more of “Anna Gilmore” »

Rebecca Bonny

Community Development Coordinator

Rebecca Bonny, Community Development Coordinator, joined the FSH Society in May 2019. Rebecca graduated with a Bachelors in Philosophy from UMass Lowell and a Masters in Project Management from Southern New Hampshire University. Her background involves working in the educational field for schools and summer camps. Becca loves volunteering during the holidays with her mother … Read more of “Rebecca Bonny” »

Dermot Whittaker

Development Coordinator

Dermot Whittaker, Development Coordinator, joined the FSH Society in May 2019 to provide database and data management skills. His background includes for-profit marketing (software) and content writing. In the non-profit world, he has applied archiving and data management at local institutions including the American Academy of Arts & Sciences, the USS Constitution Museum, and Tufts … Read more of “Dermot Whittaker” »