Our Staff

Mark Stone, FSH Society CEO

Mark A. Stone

Chief Executive Officer

Mark A. Stone has served as an executive leader of research-focused patient advocacy nonprofit organizations for the past 13 years. Prior to joining the FSH Society, he was the chief executive officer of NephCure Kidney International. During his tenure at NephCure, Stone launched the NephCure Accelerating Cures Institute (NACI), a drug discovery initiative anchored by … Read more of “Mark A. Stone” »

Daniel Perez

Daniel Paul Perez

Chief Science Officer and Co-Founder

Daniel Paul Perez is one of the nation’s leading advocates and experts on living with facioscapulohumeral muscular dystrophy (FSHD), FSHD molecular and genetics research, and clinical aspects of the disease. Daniel established the Society in 1987 after meeting fellow FSHD patient and Society co-founder, Stephen Jacobsen. Daniel developed the by-laws of the Society, incorporated the … Read more of “Daniel Paul Perez” »

June Kinoshita

Chief Strategic Programs Officer

June Kinoshita, Chief Strategic Programs Officer, joined the FSH Society in 2012 and served as its Executive Director until September of 2017. Previously, June co-founded and served as Executive Editor of the Alzheimer Research Forum, the pre-eminent Web community for researchers in neurodegenerative disorders. June has worked closely with a variety of foundations to develop initiatives … Read more of “June Kinoshita” »

Lisa Schimmel

Lisa C. Schimmel

Chief Financial Officer

Lisa C. Schimmel, Chief Financial Officer, joined the FSH Society in April 2016.  Lisa is a CPA and has a wealth of experience in small to medium size non-profits as well as for-profit companies.  She brings to the FSH Society her expertise in accounting, reporting, and strategic planning.  Prior to joining the FSH Society, she … Read more of “Lisa C. Schimmel” »

Beth Johnston

Chief Community Development Officer

Beth Johnston, Chief Community Development Officer, joined the FSH Society in August of 2016 to assist the Executive Director and the leadership team to create, execute and grow the Society’s fundraising plan and ongoing efforts. Her long history with the Society includes fundraising, Board membership, and grant writing. She will continue her commitment to raising … Read more of “Beth Johnston” »

Robyn O’Leary

Program Manager

Robyn O’Leary, Program Manager, joined the FSH Society in May 2016 to provide administrative support and coordinate the society’s meetings and events. Before joining the society, she was Senior Education Coordinator and Marketing Compliance Liaison at Dentsply Sirona where she worked in a broad range of administrative and marketing roles over 15 years. Robyn lives … Read more of “Robyn O’Leary” »

Anna Gilmore

Community Development Coordinator

Anna Gilmore, Community Development Coordinator, joined the FSH Society in March 2018. She comes to the organization from Northeastern University, where she worked in the City & Community Affairs division for the last 7 years. Her projects there included implementing co-curricular volunteering programs, and facilitating student leadership development and training with a focus on civic … Read more of “Anna Gilmore” »