Our Staff

Mark Stone, FSH Society CEO

Mark A. Stone

Chief Executive Officer

Mark A. Stone has served as an executive leader of research-focused patient advocacy nonprofit organizations for the past 13 years. Prior to joining the FSH Society, he was the chief executive officer of NephCure Kidney International. During his tenure at NephCure, Stone launched the NephCure Accelerating Cures Institute (NACI), a drug discovery initiative anchored by … Read more of “Mark A. Stone” »

Daniel Perez

Daniel Paul Perez

Chief Science Officer and Co-Founder

Daniel Paul Perez is one of the nation’s leading advocates and experts on living with facioscapulohumeral muscular dystrophy (FSHD), FSHD molecular and genetics research, and clinical aspects of the disease. Daniel established the Society in 1987 after meeting fellow FSHD patient and Society co-founder, Stephen Jacobsen. Daniel developed the by-laws of the Society, incorporated the … Read more of “Daniel Paul Perez” »

June Kinoshita

Chief Strategic Programs Officer

June Kinoshita, Chief Strategic Programs Officer, graduated from Harvard College, where she concentrated in physics. She joined the FSH Society in August of 2012. Previously, June co-founded and served as Executive Editor of the Alzheimer Research Forum, the pre-eminent Web community for researchers in neurodegenerative disorders. June has worked closely with a variety of foundations to … Read more of “June Kinoshita” »

Lisa Schimmel

Lisa C. Schimmel

Chief Financial Officer

Lisa C. Schimmel, Chief Financial Officer, joined the FSH Society in April 2016.  Lisa is a CPA and has a wealth of experience in small to medium size non-profits as well as for-profit companies.  She brings to the FSH Society her expertise in accounting, reporting, and strategic planning.  Prior to joining the FSH Society, she … Read more of “Lisa C. Schimmel” »

Beth Johnston

Chief Community Development Officer

Beth Johnston, Chief Community Development Officer, joined the FSH Society in August of 2016 to assist the Executive Director and the leadership team to create, execute and grow the Society’s fundraising plan and ongoing efforts. Her long history with the Society includes fundraising, Board membership, and grant writing. She will continue her commitment to raising … Read more of “Beth Johnston” »

Robyn O’Leary

Program Manager

Robyn O’Leary, Program Manager, joined the FSH Society in May 2016 to provide administrative support and coordinate the society’s meetings and events. Before joining the society, she was Senior Education Coordinator and Marketing Compliance Liaison at Dentsply Sirona where she worked in a broad range of administrative and marketing roles over 15 years. Robyn lives … Read more of “Robyn O’Leary” »

Kate Puzzanghera

Kathryn Puzzanghera

Development Coordinator

Kathryn (Kate) Puzzanghera, Development Coordinator, joined the FSH Society in October 2016 to help provide administrative and database support for our members and donors.  She is a recent graduate of Wellesley College, where she received her degree in Religion.  At Wellesley, Kathryn was a member of her college’s 504/ADA oversight committee and a founding member … Read more of “Kathryn Puzzanghera” »