Scientific Advisory Board

David E. Housman, PhD, is Chairman of the FSH Society’s Scientific Advisory Board (SAB) and is also Ludwig Professor of Biology at Massachusetts Institute of Technology. Professor Housman received his BA and PhD from Brandeis University in 1966 and 1971, respectively. He is a member of both the National Academy of Sciences and the Institute … Read more of “David E. Housman” »

David Glass

Co-Chair, Science, Technology, and Research Committee

David Glass, MD, is Executive Director of the Novartis Institutes for Biomedical Research in Cambridge, Massachusetts. Prior to joining Novartis, he was Vice President for Muscle Diseases at Regeneron Pharmaceuticals, where he worked for 14 years. Dr. Glass serves on both the Board of Directors and Scientific Advisory Board of the FSH Society. He holds an … Read more of “David Glass” »

Louis M. Kunkel, PhD, is internationally recognized in the field of human genetics and the genetics of muscular dystrophy in particular. Over the past three decades, Lew has devoted his career to understanding the molecular basis and developing a therapy for neuromuscular disorders and muscular dystrophy. In addition to his role as Board member, Lew serves … Read more of “Louis M. Kunkel” »

William R. Lewis III, MD, is Clinical Professor of Internal Medicine in the Division of Cardiovascular Medicine at the University of California, Davis Medical Center and is Director of the Echocardiography Laboratory and Heart Failure Program. As a member of the Board’s Investment Advisory Committee, he also serves on the Society’s Scientific Advisory Board. Having received … Read more of “William R. Lewis III” »

Michael R. Altherr, PhD, received a BS degree in Biological Sciences from the Florida Institute of Technology in 1979 and an MS in 1981. He received his PhD from the University of California in 1986. Dr. Altherr then began working in biotechnology, where he developed a passion for creating tools that would support both the Human … Read more of “Michael R. Altherr” »

Robert Brown MD PhD

Robert H. Brown, MD DPhil, is Professor and Chair of Neurology at the University of Massachusetts Medical Center and Medical School. Throughout his career, Dr. Brown has exhibited exceptional commitment to curing neuromuscular disease which he leverages in his role as the Society’s Board Member Emeritus and Scientific Advisory Board member. In 1984, Dr. Brown … Read more of “Robert H. Brown” »

Rune R. Frants, PhD, is Professor of Medical Genetics at Leiden University Medical Center in the Netherlands. Dr. Frants received his PhD from Abo Akademi.  Sparked from a conversation with a colleague, Dr. Frants’ fascination with FSHD began early in his professional academic career at the Institute of Human Genetics, Free University Amsterdam, and the Institute … Read more of “Rune R. Frants” »

Katherine D. Mathews, MD, is a Pediatric Neurologist and Director of the Child Neurology Clinic at the University of Iowa Hospitals and Clinic in Iowa City, Iowa. She is also an Associate Professor of Pediatrics at the Roy J. and Lucille A. Carver College of Medicine, University of Iowa. Dr. Mathews became involved in the FSHD … Read more of “Katherine D. Mathews” »

George W.A.M. Padberg, MD, is head of the award-winning Department of Neurology and Chairman of the Neuro Sensory Cluster of UMC St. Radboud and a renowned expert in the field of neuromuscular diseases. He combines a great academic production with specialized patient care as well as a mode of governance that have helped many students become … Read more of “George W.A.M. Padberg” »

Kathryn Wagner, MD PhD, is Director of the Center for Genetic Muscle Disorders at The Kennedy Krieger Institute. She is also an Associate Professor for the Department of Neurology and Neuroscience at The Johns Hopkins School of Medicine in Baltimore, where she conducts clinical trials in muscular dystrophy and cares for patients with FSH dystrophy. Dr. … Read more of “Kathryn Wagner” »

William R. Lewis Sr.

MD, Chair Emeritus

William R. Lewis Sr., MD, Chair Emeritus, has been a member of the Board of Directors since 1991 and served as Chairman from 2006-2018. As a neurological surgeon with more than four decades of experience—and the husband and father of FSHD patients—Dr. Lewis brings his medical expertise and compelling personal interest to his role at the … Read more of “William R. Lewis Sr.” »