Thank you for considering employment with FSH Society. If you feel that your skills and experience are aligned to the career opportunities posted please e-mail your resume directly to with the job title in the subject line.

We thank all applicants for their interest, but only candidates chosen for an interview will be contacted.

No phone calls, please.

Program Manager

Organization Overview

At the FSH Society, our mission is accelerating treatments and a cure for FSHD Muscular Dystrophy.   We are doing this by championing patient education, funding cutting-edge research and providing the highest-quality patient advocacy services. This is an outstanding opportunity for an individual to join a rapidly growing and fast paced global organization which is leading the fight to treat and to cure FSHD.


The Program Manager, reporting to the CFO-COO, is responsible for designing, coordinating and improving the internal and external programs of the FSH Society. The Program Manager is responsible for anticipating issues, developing solutions, and managing resolutions.  The Program Manager has a customer-service mindset; is detail-oriented; and is collaborative.  Working with the management team, this position will contribute to the development and implementation of organizational strategies, policies and practices, and identify opportunities for continual improvement. The Program Manager will also interact with the Board of Directors and cultivate existing relationships with vendors.

Core Duties and Responsibilities

The following represents a list of essential duties and responsibilities; other duties may be assigned as required.

  • Programs & Events (55%)
    • Develop a budget and operating plan for programs and events
    • Review and coordination of related program contracts
    • Organize programs and events in accordance with the mission and goals of the organization
    • Manage logistics including catering, audio-visual lodging, and transportation (if applicable)
    • Coordinate communications and materials needed for event (marketing, literature, printed programs, etc.)
    • See program, events, and projects to completion and engage in evaluation measures
    • Overall grant administration which includes maintaining records of research grants, progress reports, and payments
  • Finance & Corporate Affairs (45%)
    • Review and assist with CEO’s calendar and schedule.
    • Assure timely processing of accounts payable in an online system, including verifying and coding invoices, vendor setup, and ensuring payments are accurate and timely.
    • Communicates with vendors and service providers to ensure the accuracy of all organizational invoices and bills, requests modifications and clarifications as required. Presents bills to specific managers for their review and approval as required.
    • Process payroll, expense reports, and benefit coordination with HR Knowledge. Assist with the open enrollment process.
    • Schedule and coordinate annual trainings such as Respectful Workforce Training
    • Coordinate the annual signing of the Conflict of Interest forms
    • Coordinate and maintain up-to-date Labor Posters
    • Support and train staff with office resources and technology
    • Work in coordination with the CFO-COO to manage office work-flow patterns, standard operating procedures, and reporting mechanisms
    • Prepare meeting packet and take minutes at Board/Committee meetings
    • Oversee website updates and maintenance, including e-commerce forms.
    • Keep office in good operating order through organizing files, ordering office supplies, tidying shared spaces, managing shared-resource calendars, etc.
  • Other ad hoc requests, projects and support as needed, including supporting audit activities and any other financial tasks.

Other Duties and Responsibilities

  • Strong project management skills
  • Cooperative, collaborative and flexible team player with an eagerness to learn
  • Ability to thrive in an autonomous, fast-paced work environment and manage multiple projects simultaneously. Some evenings and weekends may be required.  Some travel will be required.
  • Experience with nonprofit processes preferred
  • Strong written/verbal communication and interpersonal skills
  • Self-starter, enthusiastic, self-motivated
  • Committed to excellence and quality


  • BS/BA Degree or Equivalent
  • At least three to five years of relevant work experience

Language Skills:

  • Ability to write reports and business correspondence
  • Ability to effectively present information and respond to questions

Physical and Practical Demands:

The physical demands described here are representative of those that must be met by an employee to successfully perform the essential functions of this job. Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions.

  • Must be able to see and read fine print. Employee will have close visual contact with a computer monitor constantly.
  • Must be able to communicate utilizing a telephone
  • Mobility to allow access to all parts of the office
  • Must be willing and able to learn all necessary computer functions
  • While performing the duties of this job, the employee is regularly required to lift boxes weighing at least 20 lbs., will sit for long periods of time, and may use repetitive wrist and hand motions involved in sorting and handling documents. The employee is regularly required to reach, with hands and arms.

How to Apply

Please send the following: (a) one-page cover letter, (b) resumé, and (c) the names and telephone numbers of three references by e-mail to: with the job title in the subject line.

The FSH Society is an equal opportunity employer, which welcomes qualified applicants of all races, ethnicities, genders, and sexual orientations.