Board of Directors

Mark Stone, FSH Society CEO

Mark A. Stone

Chief Executive Officer

Mark A. Stone has served as an executive leader of research-focused patient advocacy nonprofit organizations for the past 13 years. Prior to joining the FSH Society, he was the chief executive officer of NephCure Kidney International. During his tenure at NephCure, Stone launched the NephCure Accelerating Cures Institute (NACI), a drug discovery initiative anchored by … Read more of “Mark A. Stone” »

James A. Chin, Sr., Chair, Chair of Investment Committee, recently retired from the firm of UBS Financial Services in White Plains, New York where he was Managing Partner of the Chin-Meador Team and Senior Vice-President. Jim oversees the Society’s investments and also serves as chair of the Board of Directors. Prior to his role as … Read more of “James A. Chin, Sr.” »

Howard L. Chabner

Vice Chair

Howard L. Chabner, Vice Chair, has been a member of the Board of Directors since 2001 and Vice Chairman since 2006. He was diagnosed with FSHD at age 18, in 1975, and has used a power wheelchair since 1990. Leveraging his 20 years of experience practicing corporate, equipment leasing, and commercial law, Howard provides legal guidance … Read more of “Howard L. Chabner” »

Ellen Hannan


Ellen Hannan, Treasurer, joined the Board of Directors in 2014 and will co-chair the Society’s annual New York fundraiser, “A Festive Evening of Song.” She is a recently retired Wall Street analyst with over 30 years of experience in the energy industry. Ellen serves on the board of directors of Cinco Resources, Inc., as a member … Read more of “Ellen Hannan” »

Christine Ford


Christine Ford, Secretary,  joined the Board in 2016. Chris, a business graduate from California State University, Sacramento, earned her CPA license in 1984 as an auditor with the California State Auditor.  She then moved on to various management positions with the California Lottery and the California State Teachers’ Retirement System, where she was the CFO and … Read more of “Christine Ford” »

Amy Z. Bekier obtained a Master’s degree in Education from Queens College, New York, and was successful in a career as an insurance agent and Chartered Life Underwriter. She utilized her teaching skills to train other agents. During this time she served on several boards and gained the knowledge and love of giving back to … Read more of “Amy Z. Bekier” »

David Glass

Co-Chair, Science, Technology, and Research Committee

David Glass, MD, is Executive Director of the Novartis Institutes for Biomedical Research in Cambridge, Massachusetts. Prior to joining Novartis, he was Vice President for Muscle Diseases at Regeneron Pharmaceuticals, where he worked for 14 years. Dr. Glass serves on both the Board of Directors and Scientific Advisory Board of the FSH Society. He holds an … Read more of “David Glass” »

Lee F. (Frank) Kolakowski, PhD. Frank is a Senior Scientist at Tetracore, Inc., a Rockville, Maryland-based biotechnology company that develops innovative diagnostic tools and instruments for the detection of infectious diseases and bio-terrorism threat agents. Frank’s 25-year scientific research career also includes positions on the faculty of the University of Texas Health Science Center and as … Read more of “Lee F. Kolakowski” »

Louis M. Kunkel, PhD, is internationally recognized in the field of human genetics and the genetics of muscular dystrophy in particular. Over the past three decades, Lew has devoted his career to understanding the molecular basis and developing a therapy for neuromuscular disorders and muscular dystrophy. In addition to his role as Board member, Lew serves … Read more of “Louis M. Kunkel” »

Stuart Lai. Based in New York City, Stuart is the Technology Architect for REDI Technologies, a software system provided to professional traders. He managed a 60-person team that originally developed REDI EMS software at Goldman Sachs. The technology was spun out in 2013 into REDI Technologies, where Stuart’s job is to reimagine the REDI system to … Read more of “Stuart Lai” »

Linda Laurello, MBA. Linda is the Chief Financial Officer of Delta Railroad Construction, Inc. and was previously Project Manager and Contracts Manager for Delta. She is a graduate of John Carroll University with a BS in Business Administration and MBA in Finance at Northeastern University. In January of 2012, she lost her grandfather, Cosmo (Larry) … Read more of “Linda Laurello” »

William R. Lewis III, MD, is Clinical Professor of Internal Medicine in the Division of Cardiovascular Medicine at the University of California, Davis Medical Center and is Director of the Echocardiography Laboratory and Heart Failure Program. As a member of the Board’s Investment Advisory Committee, he also serves on the Society’s Scientific Advisory Board. Having received … Read more of “William R. Lewis III” »

Michelle Mackay joined the Board of Directors in 2010, where she serves on the Development and Nominating committees. As an FSHD patient, she is eager to help advance the Society in the U.S. and abroad. Prior to joining the Board, Michelle has had a career in the travel industry in Australia and in the U.K. The Australian … Read more of “Michelle Mackay” »

Marie Morrell has worked in the aerospace and defense industry since 2003 and currently serves as a Vice President and in-house counsel for an Arizona-based company that designs, develops and manufactures survivable fuel systems for helicopters around the world.  Her multifaceted experience includes contract negotiations with domestic and international customers, both government and civilian, and … Read more of “Marie Morrell” »

George is a co-founder, Director and Chief Financial Officer of vXchnge Holdings LLC. vXchnge provides carrier neutral data center services in North America. Prior to his current role, George was Chief Financial Officer of Switch and Data Facilities Company, a NASDAQ listed company that provided data center services in 23 markets across North America. George … Read more of “George Pollock Jr” »

Tom Ruekert is the Vice President for Palo Duro Hardwoods. He assisted with the development of a new charter school in his community that opened in 2013 and now sits on the governing board. Tom also spends his free time coaching his children in sports. Tom is looking to work closely with our development and … Read more of “Tom Ruekert” »

Neil A. Solomon, MD, is a physician, managed care expert and health system innovator.  While serving in various physician executive roles at Kaiser Permanente, Health Net, and Blue Shield of California, and through chairing and teaching in several statewide practice improvement initiatives in California, Dr. Solomon developed and led large-scale programs to improve quality and efficiency … Read more of “Neil A. Solomon” »

Carden Wyckoff

Carden Wyckoff has been an activist and ambassador for the FSH Society since her high school years. A 2015 graduate of the University of Georgia, where she earned her B.S.A. in biological sciences, she was a leader among disability advocates who worked to improve the accessibility of university properties. She was a member of the … Read more of “Carden Wyckoff” »

William R. Lewis Sr.

MD, Chair Emeritus

William R. Lewis Sr., MD, Chair Emeritus, has been a member of the Board of Directors since 1991 and served as Chairman from 2006-2018. As a neurological surgeon with more than four decades of experience—and the husband and father of FSHD patients—Dr. Lewis brings his medical expertise and compelling personal interest to his role at the … Read more of “William R. Lewis Sr.” »

Daniel Perez

Daniel Paul Perez

Co-founder and director emeritus

Daniel Paul Perez is one of the nation’s leading advocates and experts on living with facioscapulohumeral muscular dystrophy (FSHD), FSHD molecular and genetics research, and clinical aspects of the disease. Daniel established the Society in 1987 after meeting fellow FSHD patient and Society co-founder, Stephen Jacobsen. Daniel developed the by-laws of the Society, incorporated the … Read more of “Daniel Paul Perez” »