Everything you ever wanted to know about FSHD

(but were afraid to ask)

There’s no doubt that facioscapulohumeral muscular dystrophy is a complicated condition. The challenge of pronouncing it correctly is a piece of cake compared to the difficulty of understanding its genetics, peculiar effects on muscles, and the extreme diversity of its symptoms and severity. Our webinar on May 22 will introduce the basic facts about FSHD for people who’ve just been diagnosed, or who want to brush up on their knowledge.

Samantha LoRusso, MD

Dr. Samantha LoRusso is an assistant professor of neurology at the Ohio State University Wexner Medical Center in Columbus, OH. She worked closely with Dr. John Kissel at OSU as a fellow and then as faculty until Dr. Kissel’s retirement in 2018. She is a principal investigator or sub-investigator for research studies in FSHD, myotonic dystrophy, GNE myopathy, and Pompe disease. She is OSU’s current NeuroNEXT fellow, a fellowship designed to help in the development of clinical trial protocols.

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2 responses to “Everything you ever wanted to know about FSHD”

  1. Due to a previous commitment, I unfortunately missed Dr. Samantha LoRusso’s webinar presentation that I was looking forward to seeing. Was this recorded? Can I access it on the FSH site?

    Thank you very much.

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