Gear up for World FSHD Day 2019!

Sharpen your orange slicers and polish your selfie sticks! World FSHD Day is on June 20th and you can help us turn social media world orange on that day by sharing the World FSHD Day logo and your orange slice selfie photos. If you want to make an even bigger splash, how about planning a party to celebrate, or starting a virtual team to support our Team FSHD Cycling heroes who will be tackling the cross-country Race Across America? 

Check out our World FSHD Day awareness raising page for ideas and download our toolkit, which is packed with handy guides and template letters.


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