Lexi Pappas’ story of filmmaking and FSH muscular dystrophy

Diane and Lexi Pappas
Diane and Lexi Pappas

Filmmaker Taylor Toole takes us inside the world of Lexi Pappas, a fellow documentarian who lives with a condition called facioscapulohumeral muscular dystrophy (FSHD). Last year, Lexi’s own documentary about her family’s four-generation journey with FSHD, went viral. Learn about the remarkable woman behind the camera.


Leave a Reply

Your email address will not be published. Required fields are marked *