The latest issue of the Watch is here

Click Here to read all the recent research and community updates!

Highlights of this issue include: 

  • Reports from the International Research Congress & the Patient Connect Conference
  • Profiles of our upcoming Walk & Roll fundraisers
  • Calls to action: Clinical Trial Readiness study; StoryCorps contributions
  • Inspiring stories from several of our members!


Interested in contributing to future editions? Please contact June Kinoshita: or 781-301-6649.


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