UC Irvine recruiting volunteers for study

Volunteers who are 18 to 55 years of age with FSHD are needed for a study to evaluate functional mobility. The principal investigator is Jay Han, MD, of the University of California Irvine Department of Physical Medicine and Rehabilitation. The purpose of the study is to investigate a new method to measure functional mobility in FSHD population in preparation for future therapeutic clinical trials.

About the Study

  • Involves up to 2 visits to the Acute Rehab Unit or outpatient PT/OT clinic at University of California, Irvine Medical Center in Orange, CA
  • Up to 1 hour for each visit
  • $200 compensation after completion of the study
  • No cost to you or insurance.

If interested, please contact: 
Vicky Chan, DPT
Phone: 949-447-8339
Email: vchan2@uci.edu
And ask about the “The FSHD Study”

Download flyer here.

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16 responses to “UC Irvine recruiting volunteers for study”

  1. I’d love to participate but I’m 64. Diagnosed at 54, after initial on-set at 51, i’ve Done very well by doing physical therapy. I live alone, grocery shop, drive, walk for exercise and teach. I do not use a wheelchair or any supports except a Philadelphia collar when I drive.

    Thank you for asking,

    Margaret Mueller
    Roseville, CA

    • Hi Margaret,

      Thank you very much for your interest in our study. Unfortunately, we are recruiting study participants with FSHD between the age of 18 to 55 years old. It is very nice to hear that you are staying active. We will keep you posted if new studies come up.

      Thank you again,
      Vicky.

    • Hi Sean:
      Thank you very much for your interest in our study. We are investigating a new outcome measure of functional mobility for FSHD population. There are two visits for the study and each visit lasts about 1 to 1.5 hours. Please send us an email and we can discuss more in details.
      We look forward to hearing from you.
      Thanks so much!
      Vicky.

    • Hi Rose:
      Thank you very much for your interest in our study.
      We would evaluate your functional mobility and strength of your arms and legs to determine your eligibility for the study. We are recruiting a wide range of strength and functional mobility at the moment. Please feel free to contact me directly and we can discuss more in details.
      We look forward to hearing from you.

      Thank you again,
      Vicky.

  2. I just finished participating in this study as their very first volunteer patient, visiting on the 14th and 21st of August 2018. It was very easy and straightforward. Vicky Chan, and the medical student, Tony Nguyen, working with her, are wonderful! UCI Orange has free valet parking at the site that is easy to use.

  3. My name is Jeff Brooks I live in Utah l would love to volunteer problem is I would have to drive and the $200 will only cover the gas I would need a hotel for the night and then drive back. Please let me know what you think.
    Thank-You
    Jeff

    • There’s a link to the page describing the study. Here’s that info. You should contact Vicky Chan if interested. We don’t post the consent form because she didn’t give it to us. I’ve seen them and they can be long and require the study coordinator’s help to understand.

      About the Study

      – Involves up to 2 visits to the Acute Rehab Unit or outpatient PT/OT clinic at University of California, Irvine Medical Center in Orange, CA
      – Up to 1 hour for each visit
      – $200 compensation after completion of the study
      – No cost to you or insurance.

      If interested, please contact:
      Vicky Chan, DPT
      Phone: 949-447-8339
      Email: vchan2@uci.edu
      And ask about the “The FSHD Study”

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