Chris is the voice of the NBA’s Brooklyn Nets and as founder of the Chris Carrino Foundation, an outspoken advocate for FSH muscular dystrophy. We will hear his story—how he embarked on his career as a sports broadcaster, keys to success in such a high-pressure job, observations about the game—as well as his FSHD journey. How did he learn he has FSHD, and why did he choose to keep his diagnosis secret until recently? How does he manage the intense travel and demands of his job? Why did he create the foundation in 2011, and what is its mission? What’s next for Chris? Post your questions in the comments section and we’ll ask him during the show! Or you can call in and talk to him live on the air.
Also, don’t forget, World FSHD Day and Team FSHD Cycling’s Race Across America are coming soon!! Get your photo onto the Team FSHD Cycling Race Across America support vans by sending in a photo and donation. Deadline June 7.
How to get started:
- Register your team. Contact Kate Puzzanghera (firstname.lastname@example.org or 781-301-7301) with your full name and team name (e.g. “Team Smith Family”).
- Email high-resolution photo (300 dpi) to Brian Luoma (email@example.com). The photo can be of yourself or any individual whom you wish to honor, and will be turned into a magnetic decal that will be displayed on the support van for Team FSHD Cycling.
- Reach out to your friends and family and encourage them to support you in this fundraiser. See attached letter/social media templates. IMPORTANT: Please include this language on any letters/publicity: “Note: Team FSHD Cycling is holding its 2017 Race Across America Campaign as independent volunteers, not as employees, agents, Board members, advisors, or volunteers of the FSH Society.”
Download the Team Fundraising Toolkit for full details.