FSH Society’s first Open House!

The FSH Society is looking forward to seeing you!


If you live in the New England area or even just happen to be visiting, we’d love to have you stop by our office on March 7, 2017, between 5 and 7pm for our Spring Open House!

We’re very excited to show you our new office space.  We have made lots of improvements with our move: cabinets for all the brochures we send you, a fridge that’s larger than the microwave, a conference room with a projector so we can talk to Beth in Colorado, and full desks for Kate and Robyn who were previously working off folding tables.  This new space is part of a new chapter for the Society, as we strive to grow as an organization to better serve you and reach our goal of finding a cure for FSHD.

This will be a great opportunity to meet many of the staff members in person and learn about their roles with the Society.  It will also be a chance to spend time and exchange advice with fellow patients, learn about clinical trials, ask questions of researchers with local Biotechs, and to share your concerns and goals for the FSH Society.

We will be providing food and there is plenty of parking, along with an elevator for accessibility.  You are welcome to bring your children.  We know you have work, so we understand if you have to come a little late, we still want to see you!

Please RSVP so that we can plan.  To RSVP or for any other questions, e-mail Kathryn.puzzanghera@fshsociety.org.


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