Hot off the press, our current issue of FSH Watch keeps you up to date on important advances in research and medical care, as well as news about your Society, regional meetings, and upcoming events. Individuals living with FSHD share their thoughts about “coming out” and their responsibilities as advocates and research participants. Highlights include:
- Human FSHD muscles cells have been successfully grown in a mouse, providing a possible new animal model (page 1);
- First-ever World FSHD Day was celebrated on June 20 (page 1);
- Dr. Rabi Tawil answers patients’ questions about the evidence-based FSHD care guideline published in 2015 (page 3);
- A patient reflects on the responsibility that comes with volunteering for a clinical study (page 5);
- NIH funding for FSHD research hits a new record (page 4);
- EIM: An inexpensive, fast tool for clinical trials? (page 6);
- Feed you soul. Artists with FSDH get extra creative (page 8);
- Newly awarded FSH Society grants (page 16);
- Upcoming patient meetings and events (page 20);
- Progress in biomarkers for FSHD (page 22).
To read, download FSH Watch 2016 Issue 1.