2015 Spring/Summer issue of FSH Watch is out!

2015 SpringSummerFSHWatchCoverThe latest issue of our FSH Watch newsletter has just come out. You can download it here.

Highlights include:

  • The first evidence-based FSHD care guideline has been published. What is it? How does this empower the patient? (Page 1).
  • #FSHDStronger, our new awareness campaign (Page 1).
  • The decision to stop working: what you need to know. (Page 8).
  • Advancing clinical trial readiness for FSHD (Page 14).
  • Opportunities to volunteer. Research studies need you! (Page 16).
  • Why seek genetic testing for FSHD? (Page 24).
  • Breathing issues that every patient needs to understand (Page 26).


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