Event Place: The Westin Boston Waterfront
425 Summer Street
Boston MA 02210
The 2014 FSHD Connect Meeting, sponsored by the FSH Society, will bring together hundreds of patients and family members with top researchers, doctors and health experts for two days of immersive learning and community-building. This year’s meeting will feature talks by leaders in the field of FSHD, including reports from major clinical and research centers, question-and-answer panel sessions, and educational workshops. Popular breakout sessions include topics that members have requested, including teenagers and young adults, caregiving, traveling and sports.
Download the 2014 FSHD Connect Final Program.
Overnight accommodations are available at Westin Boston Waterfront. The FSH Society has a special conference rate of at $189 per night (single or double occupancy), plus taxes. The hotel guarantees 30 accessible rooms, 14 with roll-in showers. For the best selection of accessible rooms and showers, please make your reservations early. The closing date for the Society’s block of rooms is Tuesday, July 22. Please indicate your Group Affiliation as “FSH Society” when reserving. For reservations, call (888) 627-7115 or (617) 532-4600, or reserve on-line here.
Please register online or by mailing the completed Registration Form by Friday, August 1. Credit card or checks payable to “FSH Society.” Confirmation for the meeting will be mailed/e-mailed to you upon receipt of your registration.
We welcome additional gifts and sponsorships to support the meeting programs and scholarships. If you would like to make a gift to the FSH Society or you cannot attend but would like to support the event, please visit this page.
Questions? Contact us
Early bird discount on registration available through July 11, 2014.