The FSH Society
The Staff of the FSH Society
June graduated from Harvard College, where she concentrated in physics. She joined the FSH Society in August of 2012. Previously, June co-founded and served as Executive Editor of the Alzheimer Research Forum (www.alzforum.org), the pre-eminent web community for researchers in neurodegenerative disorders.
June has worked closely with a variety of foundations to develop initiatives for multiple sclerosis, schizophrenia, amyotrophic lateral sclerosis, Parkinson’s disease and other disorders. She is also an entrepreneur, having co-founded SociaLife, a start-up in healthcare social networks, and N-of-One, Inc., a pioneering personalized oncology company. June serves on the Advisory Council for the Harvard-MIT Division of Health Science & Technology and the National Board of the American Health Assistance Foundation. June began her career as a science journalist, working as a writer and editor for Scientific American magazine, Science, the New York Times Magazine and many other national publications. June and her husband Tod Machover live in Waltham, MA, where they tend to teenagers, cats, goats and chickens. She enjoys music of all genres, from opera to American Idol.
June can be contacted through the Society’s Executive & Development office:
FSH Society, Inc.
Daniel Paul Perez
Daniel Paul Perez is a graduate of Harvard College. He has an extensive background in software and database design, working on corporate MIS and financial systems, marketing research software and data acquisition. He was chief architect and designer of Oracle's multi-dimensional database application and worked on the Human Genome Project in Massachusetts. He also worked as a database specialist on software designed for monitoring clinical drug trials. Mr. Perez started his career in neurobiology and muscle research at Harvard. He subsequently moved into large scale information systems and databases developing skills in traditional management information systems as well as large scale databases and software design. Mr. Perez's expertise in data warehousing and databases led to his contributions in bio-informatics and databases for the Human Genome Project in Massachusetts. Mr. Perez’s dedication to founding the Society began when he met fellow FSHD patient Dr. Stephen Jacobsen in 1987. Daniel developed the by-laws of the Society, incorporated the organization as a nonprofit corporation and organized the Board of Directors and Scientific Advisory Board. Mr. Perez has testified nearly forty times before Congressional Committees seeking funding for FSHD research and meets regularly with researchers, clinicians and the heads of the National Institutes of Health and other federal agencies to help organize meetings, symposia, research plans, white papers, and research on dystrophy research. In 2001, Mr. Perez was a key architect and force in the passage and implementation of the Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2001 ("MD-CARE Act"), signed into law on December 18, 2001. The MD CARE Act mandates the National Institutes of Health (NIH) and other federal agencies working on facioscapulohumeral muscular dystrophy and muscular dystrophy to rapidly accelerate research on these diseases. Mr. Perez serves as a Special Government Employee and Member of the fifteen member Federal Advisory Committee authorized by the "MD-CARE Act" called the Muscular Dystrophy Coordinating Committee (MDCC). Daniel and his wife, Sue, live in Bedford, Massachusetts.
Daniel can be contacted through the Society’s Research Programs office:
Doris joined the FSH Society in February 2011, she comes to us with strong administrative and bookkeeping skills both in non-profit and for profit organizations. Doris can be contacted through the Society’s Executive & Development office:
FSH Society, Inc.
FSH Society, Inc. • 450 Bedford Street • Lexington, MA 02420 • Tel: 781 301-6060 • Fax: 781 862-1116