Helping patients and families improve their quality of life and regain a sense of control

For Patients

The Pulmonologist and FSHD


 

Pulmonology is a medical specialty that covers diseases of the lungs and the respiratory tract. A pulmonologist, or pulmonary disease specialist, is a physician who possesses specialized knowledge and skill in the diagnosis and treatment of pulmonary (lung) conditions and diseases. Pulmonology is classified as an internal medicine subspecialty.  Pulmonologists help patients with breathing and respiratory issues and, in more severe or intensive care situations help with both invasive and non-invasive mechanical ventilation.

Keeping tabs on your respiratory status and function is important when you have been diagnosed with FSHD.  The physiatrist, neurologist or internal/general medicine doctor will usually refer patients to a pulmonologist for a pulmonary function workup when respiratory insufficiency or respiratory failure is suspected.  It is very important for FSHD patients to insist on periodic and baseline testing for respiratory insufficiency even though they may be pre-symptomatic.

Please refer also to Health Information tab on left navigation, sub-menu item on Breathing, Pulmonary and Respiratory Health issues in FSHD, by clicking HERE

Please refer to Medical Professionals tab on left navigation, sub-menu item on Respiratory Therapists, by clicking HERE


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FSH Society, Inc. • 64 Grove Street • Watertown, MA 02472 • Tel: 617 658-7878 • Fax: 617 658-7879