Keep current with news you can use and participate in events

News & Events

Breaking News


Research pioneered by FSH Society leads to new discoveries using non-invasive MRI/MRS imaging of FSHD
SAB to meet to consider new post-doctoral funding requests
2009 Fundraising Challenge for FSHD exceeds goal!
NIH releases information on 2009 funding for MD and FSHD research
Winter 2010 FSH Watch Newsletter
SAB funds six new post-doctoral research awards
Key Facts About 2009 H1N1 Flu Vaccine from CDC.
Individuals with FSHD are advised by U.S. CDC to receive the flu shot and NOT the nasal spray flu vaccine!
FSH Society appears on NPR affiliate WCAI Cape Cod and the Islands
Summer 2009 FSH Watch Newsletter
Consortium of European government and private partners releases report showing that Facioscapulohumeral Muscular Dystrophy FSHD is the most Prevalent Muscular Dystrophy.
FSH Society Initiated Research Leads to Publication of Paper in Proceedings of the National Academy of Sciences — the first on FSHD miRNA.
FSH Society Initiated Sam and Mary Roberts Nutrition Research Describes a New MRI/MRS Imaging Method in Journal "Neuromuscular Disorders" to Provide Biomarkers for Clinical Trials and To Evaluate Muscle Damage in FSHD
2008 Special Matching Gift Offer Was a Success Doubling Your Donations
Special Matching Gift Offer Will Double Your Donation
U.S. DHHS National Institutes of Health (NIH) funds new $9 Million Senator Paul Wellstone Muscular Dystrophy Cooperative Research Center on Biomarkers for Therapy of FSHD solely focused on facioscapulohumeral muscular dystrophy
The FSH Society and Johns Hopkins School of Medicine are Recruiting Volunteers with FSHD for a Clinical Research Study
Infantile FSHD Clinic at the University of Iowa Hospitals and Clinic
FEB
01
2009 Fundraising Challenge for FSHD exceeds goal!

February 2010

In November, the Board of Directors and other major donors joined together to offer a challenge to the Society's members and friends to support promising new work. They agreed to match gifts up to a total of $131,000, on a dollar-for-dollar basis, if made by December 31, 2009.

The Society is delighted to report that 503 individuals, foundations and businesses in the FSHD community contributed $160,540 to the 2009 Fundraising Challenge.

Notwithstanding the extraordinary economic environment in which we find ourselves, the FSH Society has concluded the second most successful fundraising year ever, raising $767,208 from generous supporters like yourself.

Thank you for supporting advances in research, education, outreach and advocacy.

TEXT SIZE  minus plus

FSH Society, Inc. • 450 Bedford Street • Lexington, MA 02420 • Tel: 781 301-6060 • Fax: 781 862-1116