News & Events

Breaking News

Research pioneered by FSH Society leads to new discoveries using non-invasive MRI/MRS imaging of FSHD

SAB to meet to consider new post-doctoral funding requests

2009 Fundraising Challenge for FSHD exceeds goal!

NIH releases information on 2009 funding for MD and FSHD research

Winter 2010 FSH Watch Newsletter

SAB funds six new post-doctoral research awards

Key Facts About 2009 H1N1 Flu Vaccine from CDC.

Individuals with FSHD are advised by U.S. CDC to receive the flu shot and NOT the nasal spray flu vaccine!

FSH Society appears on NPR affiliate WCAI Cape Cod and the Islands

Summer 2009 FSH Watch Newsletter

Consortium of European government and private partners releases report showing that Facioscapulohumeral Muscular Dystrophy FSHD is the most Prevalent Muscular Dystrophy.

FSH Society Initiated Research Leads to Publication of Paper in Proceedings of the National Academy of Sciences — the first on FSHD miRNA.

FSH Society Initiated Sam and Mary Roberts Nutrition Research Describes a New MRI/MRS Imaging Method in Journal "Neuromuscular Disorders" to Provide Biomarkers for Clinical Trials and To Evaluate Muscle Damage in FSHD

2008 Special Matching Gift Offer Was a Success Doubling Your Donations

Special Matching Gift Offer Will Double Your Donation

U.S. DHHS National Institutes of Health (NIH) funds new $9 Million Senator Paul Wellstone Muscular Dystrophy Cooperative Research Center on Biomarkers for Therapy of FSHD solely focused on facioscapulohumeral muscular dystrophy

The FSH Society and Johns Hopkins School of Medicine are Recruiting Volunteers with FSHD for a Clinical Research Study

Infantile FSHD Clinic at the University of Iowa Hospitals and Clinic

Sept

'09

FSH Society appears on NPR affiliate WCAI Cape Cod and the Islands

September 23, 2009

The Point, hosted by Sean Corcoran, with guests Daniel Perez, Dr. David Housman, and Rich Holmes.

On September 23, 2009, FSH Society President, Daniel Perez, Society Scientific Advisory Board Chairman, Dr. David Housman, and Society member and event organizer, Rich Holmes, spoke with The Point's Sean Corcoran on NPR affiliate WCAI Cape Cod and the Islands.

FSH Muscular Dystrophy was discussed, as well as the upcoming Walk 'n' Roll fundraising event in Brewster, MA, on October 10th. The segment is 30 minutes in length.

Click here to listen to the entire broadcast

Many thanks to Rich Holmes for arranging the interview.

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