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FSH Society Submits FY2013 Written Congressional Testimony for FSHD Funding


Volunteers Needed! FSH Society & Kennedy Krieger Institute Johns Hopkins School of Medicine Recruiting Volunteers with FSHD for Clinical Research Study

2011 Society FSHD International Research Consortium Meeting for FSHD a Success!


Latest FSH Watch Summer 2011 Research Edition Newsletter


FSHD now Published by Several Sources as the most Prevalent Muscular Dystrophy

Marjorie & Gerald Bronfman Foundation renews pledge for FSHD research


U.S. DHHS NIH BBRI Sen. Wellstone MD CRC on Biomarkers for Therapy of FSHD web site


Marjorie & Gerald Bronfman Foundation renews pledge for FSHD research for 2011

The generosity and commitment of Mrs. Marjorie Bronfman to FSHD research began in 1997 when she began to make research grants to the FSH Society, and she has renewed her commitment for 2011 with a new grant of $50,000. Mrs. Bronfman, along with her brother and one of her daughters, is affected with FSHD. Through a process of review and recommendation by the Society’s Scientific Advisory Board, grants are awarded for research fellowships (US$30,000-US$35,000/year) for research projects that show extraordinary promise to find the cause of FSHD.

The 2011 contribution will generate important progress in FSHD research, as have the many grants that have preceded it. The FSH Society is deeply indebted to Mrs. Bronfman, to the Marjorie and Gerald Bronfman Foundation, and to other members of her family for the advances that have been made possible worldwide over these years and for the opportunity to continue advances in 2011. Mr. Edward Schechter, brother of Mrs. Bronfman, has been a careful steward of foundation resources, and he deserves much gratitude for these research grants and for the research breakthrough. For more information about research fellowships, please contact Daniel Paul Perez, President & CEO at the FSH Society or at daniel.perez@fshsociety.org.

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