People Are Supporting the FSH Society in Creative Ways
These supporters have put a personal twist on their contributions to the FSH Society. We appreciate their thoughtfulness and continued support.
- Arlene Endres, Bear Creek Elementary School, Baltimore, MD
Since 1997, Arlene has held a read-a-thon at the Bear Creek Elementary School. The children read books and get contributions to benefit the FSH Society. Arlene has been active in the Society to fight for a cure for daughter and all FSHD patients.
- Justin Cohen’s Bar Mitzvah Project
Justin’s service project for his bar mitzvah grew into a fundraiser for the Society. He made note cards and sold them to raise funds. Other Society members helped with pictures, and a chain began that went on for months—as Justin sold cards and distributed them to friends and family for purchase and further distribution. The project helped Justin communicate with others about his disease, involve other adolescents, and raise much-needed funds.
Justin inspired others, including a six year old in Washington State who began producing postcards to sell! He was also quite successful for the Society.
- Laura and Paul Kampa, Tennis Fashion Show in New York
The Kampas hosted a tennis fashion show in their home in Northport, New York. In addition to admission to the event, they also sold raffle tickets for a Chinese auction. They are close friends with a family whose son has FSHD.
- Grace Corradino, Yard Sale on Fire Island
Grace’s annual yard sale is a spirited event on Fire Island and raises much-needed funds for the Society.
- Lee Childrens' Birthdays and Grandparents’ Anniversary
The Lee children in California ask that gifts be made to the FSH Society instead of to them at birthday parties. In New York, the Lee grandparents ask guests attending their 50th wedding anniversary party to make gifts to the Society instead of to them.
- A Kindergarten Teacher and Students Make a Quilt
In a town near Boston a teacher helped her kindergarten class make an ABC quilt that they raffled at a local bank to benefit the Society. The teacher was motivated by her girlfriend’s child who has FSHD.
Gifts of $50 or more are acknowledged in the FSH Society Annual Donor report, unless you inform us that you wish your donation to be anonymous.
WILL ONE OF THESE FUNDRAISING IDEAS WORK FOR YOU? OR, SHARE ANOTHER IDEA WITH US!
Please enter your fundraising idea, including proposed date, materials (if any) to be provided by the Society, and other planning that you have carried out to date. How can the FSH Society help?
