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Community & Reference

The Biennial FSH Society International Patient and Researcher Network Day


 

2014 FSHD Connect
The FSH Society's Biennial International Network Meeting for Fshd Patients, Clinicians and Researchers
Saturday-Sunday, August 16-17, 2014
The Westin Boston Waterfront, 425 Summer Street, Boston MA 02210

The 2014 FSHD Connect Meeting will bring together hundreds of patients and family members with top researchers, doctors and health experts for two days of immersive learning and community-building. This year's meeting will feature talks by leaders in the field of FSHD, including reports from major clinical and research centers, question-and-answer panel sessions, and educational workshops. Popular breakout sessions include topics that members have requested, including teenagers and young adults, caregiving, traveling and sports. Please download, complete and mail the registration form or register online below by Friday, August 8.

To view the final program, agenda and speakers click HERE

We especially thank the attenees and our Sponsors of the Boston 2014 FSHD Connect for making this meeting possible!

Association Francaise contre les Myopathies
Cytokinetics
FSHD Global Research Foundation
FSH Society
Genzyme a Sanofi Company
Muscular Dystrophy Campaign (UK)
U.S. NIH University of Massachusetts Medical School
Senator Paul Wellstone MD Cooperative Research for FSHD
Quintiles
Ride-Away

To view the sponsors and final program, agenda and speakers click HERE

To view map of the local area with local restaurants and a listing of attractions click HERE

For those who are attending -- Welcome to Boston! Whether you are a first-time visitor or a frequent guest, we are so pleased to have the opportunity to share our beautiful city with you.  A city of distinctive neighborhoods,  great charm and timeless grace, Boston's central role in the history of our country has shaped and influenced its singular character, traditions, residents, and even its streets. We hope that you will take the time to explore the City and enjoy your  proximity to the waterfront.

We have included below a list of restaurants close to the Westin Waterfront Hotel with a wide range of culinary offerings. You also will see a list of attractions and activities for your consideration. The concierge team at the Westin Boston Waterfront is ready to assist you. We suggest that you select several restaurants, read the menus online at www.menupages.com., and then call the concierge direct line at 617-532-4601 to request help with reservations.

Overnight accommodations are available at Westin Boston Waterfront. The FSH Society has a special conference rate of at $189 per night (single or double occupancy), plus taxes. The hotel guarantees 30 accessible rooms, 14 with roll-in showers. For the best selection of accessible rooms and showers, please make your reservations early. The closing date for the Society's block of rooms is Tuesday, July 29. Please indicate your Group Affiliation as "FSH Society" when reserving. For reservations, call (888) 627-7115 or (617) 532-4600, or reserve on-line at: https://www.starwoodmeeting.com/Book/FSHSociety

Please download, complete and mail the registration form or register online below by Friday, August 8. Confirmation for the meeting will be mailed/e-mailed to you upon receipt of your registration.

Conference Registration (2 lunches included)

Early Bird Registrations must be made by July 11

$190 Member Adult (Early Bird)
Qty:
$245 Non-Member Adult (Early Bird)
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$130 12 to 18 Young Adult (Early Bird)
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$425 Member Family of 3 or more, 12 years and older (Early Bird)
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$500 Non-member Family of 3 or more, 12 years and older (Early Bird)
Qty:

Regular Registrations must be made by August 1

$225 Member Adult (Regular)
Qty:
$275 Non-Member Adult (Regular)
Qty:
$150 12 to 18 Young Adult (Regular)
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$500 Member Family of 3 or more, 12 years and older (Regular)
Qty:
$600 Non-member Family of 3 or more, 12 years and older (Regular)
Qty:

 

2014 Membership @ $50 per household
Qty:
Please accept my contribution (fully tax-deductible) in support of the meeting
$

 

Please list the names of all family members who are attending:

 

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FSH Society, Inc. • 450 Bedford Street • Lexington, MA 02420 • Tel: 781 301-6060 • Fax: 781 862-1116