Community & Reference |
 |
The Biennial FSH Society International Patient and Researcher Network Day
The FSH Society is a world leader in combating muscular dystrophy. It increases awareness and understanding and conducts research and education on the most prevalent muscular dystrophy in adults, called facioscapulohumeral muscular dystrophy (FSHD). The FSH Society has brought together more than 4,000 FSHD-affected families through education, patient network meetings, support group meetings, peer-support, and advocacy. Through the Society patients have found ways to be useful to medical and clinical researchers working on their disease. The support patients receive from one another through sharing their common experience is invaluable and immeasurable. One major way the Society fosters communication is with its biennial patient-researcher conference. The 2010 International Patient and Researcher Network Meeting will be held at the Paris and Bally’s Hotels in Las Vegas, Nevada, July 30-August 1, 2010. These hotels have been selected for their accessibility, their convenient location, and good value. They are a part of the same complex and share meeting space. This is the eleventh FSHD patient-researcher day. The intent of these meetings is to bring together patients, researchers, and clinicians to find insights and facilitate breakthroughs through dialogue. Meeting registration has closed. Please call 617-658-7878 with any questions. View the Final Meeting Program Overnight accomodations are available at Paris/Bally's Las Vegas. The Society's block of rooms closed on July 9, 2010. Reservations can be made at either Paris or Bally's hotels, however the special conference rate is no longer guaranteed. Hotel resevations can be made by calling 1-877-603-4389, or you may reserve online at either: Our group code at Bally's is SBIPR0 (last digit zero), and Paris is SPIPR0 (last digit zero). These facilities have many wheelchair accessible guestrooms, including a total of 100 rooms with roll-in showers. There is no charge for parking. Both hotels, Bally's and Paris, are located within the same complex. The elevators for each hotel are equidistant to the area where the meeting is to be held. ~ ~ ~ Dress Code for the Conference Dress for the meeting is casual or business casual, or what you enjoy wearing on a vacation weekend. Keep in mind that hotel meeting rooms are often colder than you might expect, especially in places like Las Vegas where the outside temperatures are high. Long sleeves, a jacket or sweater might be good to have along. Transportation Information, to and from McCarran Airport to Hotels There are a number of companies in Las Vegas that offer transportation for handicapped visitors. Please call company directly for detailed information and pricing. Las Vegas Transportation Nevada Medi-Car Showtime Shuttle Gray Line ~ ~ ~ TEXT SIZE
  |
FSH Society, Inc. • 64 Grove Street • Watertown, MA 02472 • Tel: 617 658-7878 • Fax: 617 658-7879
The Biennial FSHD International Patient and Researcher Network Meeting