Community & Reference
The Biennial FSH Society International Patient and Researcher Network Day
2014 FSHD Connect
The 2014 FSHD Connect Meeting will bring together hundreds of patients and family members with top researchers, doctors and health experts for two days of immersive learning and community-building. This year's meeting will feature talks by leaders in the field of FSHD, including reports from major clinical and research centers, question-and-answer panel sessions, and educational workshops. Popular breakout sessions include topics that members have requested, including teenagers and young adults, caregiving, traveling and sports. Please download, complete and mail the registration form or register online below by Friday, August 8.
To view the final program, agenda and speakers click HERE
We especially thank the attenees and our Sponsors of the Boston 2014 FSHD Connect for making this meeting possible!
Association Francaise contre les Myopathies
To view the sponsors and final program, agenda and speakers click HERE
To view map of the local area with local restaurants and a listing of attractions click HERE
Overnight accommodations are available at Westin Boston Waterfront. The FSH Society has a special conference rate of at $189 per night (single or double occupancy), plus taxes. The hotel guarantees 30 accessible rooms, 14 with roll-in showers. For the best selection of accessible rooms and showers, please make your reservations early. The closing date for the Society's block of rooms is Tuesday, July 29. Please indicate your Group Affiliation as "FSH Society" when reserving. For reservations, call (888) 627-7115 or (617) 532-4600, or reserve on-line at: https://www.starwoodmeeting.com/Book/FSHSociety
Please download, complete and mail the registration form or register online below by Friday, August 8. Confirmation for the meeting will be mailed/e-mailed to you upon receipt of your registration.
FSH Society, Inc. • 450 Bedford Street • Lexington, MA 02420 • Tel: 781 301-6060 • Fax: 781 862-1116