The Biennial FSH Society International Patient and Researcher Network Day

 

The Biennial FSHD International Patient and Researcher Network Day

The FSH Society is a world leader in combating muscular dystrophy.  It increases awareness and understanding and conducts research and education on the most prevalent muscular dystrophy in adults, called facioscapulohumeral muscular dystrophy (FSHD).

The FSH Society has brought together more than 4,000 FSHD-affected families through education, patient network meetings, support group meetings, peer-support, and advocacy.  Through the Society patients have found ways to be useful to medical and clinical researchers working on their disease.  The support patients receive from one another through sharing their common experience is invaluable and immeasurable.  One major way the Society fosters communication is with its biennial patient-researcher conference.

The 2010 International Patient and Researcher Network Meeting will be held at the Paris and Bally’s Hotels in Las Vegas, Nevada, July 30-August 1, 2010. These hotels have been selected for their accessibility, their convenient location, and good value. They are a part of the same complex and share meeting space.

View the Preliminary Program

Registration materials are now available. You may register for the meeting by postal mail or fax using the registration form. Online registration will be available by the end of January 2010. Additionally, the program and forms will be mailed to you.

View the Registration Form

For Bally’s or Paris hotel reservations, you may call 1-877-603-4389. The hotels are holding a block of rooms at $89.00 (Bally’s) per night (single or double occupancy) and $120.00 (Paris) per night (single or double occupancy), plus taxes. These facilities have many wheelchair accessible guestrooms, including a total of 100 rooms with roll-in showers. There is no charge for parking. The group code for our conference rate for Bally’s is SBIPR0 (last digit zero) and for Paris, SPIPR0 (last digit zero).

You may also make your hotel reservation online :

Bally's Las Vegas

Paris Las Vegas

For the best selection of accessible rooms and showers, please make your reservations early. The closing date for the Society’s block of rooms is July 9, 2010.

This is the eleventh FSHD patient-researcher day.  The intent of these meetings is to bring together patients, researchers, and clinicians to find insights and facilitate breakthroughs through dialogue. 

If you are new to the Society and to this site, please provide the information below. We will add you to the meeting program and registration distribution list.

$200 Adult Registration

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$180 Adult Registration with current 2009/2010 FSH Society Membership

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$105 Young Adult Registration (12 - 18 years)

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No Charge Child Registration (under 12 years)

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$50 2010 Membership (per household)

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I am/we are unable to attend but wish to support the conference:

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