October 30, 2007

The FSH Society, Inc. would like to congratulate Drs. Rabi Tawil and Silvere van der Maarel on the establishment of the Fields FSHD & NMD Research Center, wish them well, and we look forward working together to find a cause and treatment for facioscapulohumeral muscular dystrophy (FSHD).

FSH Society, Inc. Chairman of the Board of Directors, Dr. William R. Lewis Sr., M.D. expresses our gratitude to New York developer and philanthropist Richard T. Fields:

“October 26, 2007

Dear Mr. Fields:

The Board of Directors of the FSH Society wishes to express to you our gratitude for your most generous contribution toward the advancement of knowledge in seeking our common goal in the form of a cure for facioscapulohumeral muscular dystrophy (FSHD).

On Tuesday, October 23 at the FSH Society sponsored workshop in San Diego we were treated to a full day of excellent research papers from a group of extraordinary individuals who are devoting their professional lives in search for a FSHD cure.  The Fields Center can not help but be a validation and source of encouragement for the great efforts put forth by these dedicated scientists.

I look forward to meeting you personally at a future FSH meeting.

Sincerely,

William R. Lewis, M.D.

Chairman, Board of Directors

FSH Society, Inc.”

            See links below for The University of Rochester Medical Center (URMC) announcement and press release detailing the gift.

            Press Release:

http://www.fshsociety.org/fsh/RTF_PressRelease.pdf

            Contacts Letter:

http://www.fshsociety.org/fsh/RTF_ContactsLetter.pdf

            For more information about the Fields Center, please contact the Center directly at:

Fields Center for FSHD and Neuromuscular Research
University of Rochester Medical Center
Dept. of Neurology
601 Elmwood Ave., Box 673
Rochester, NY 14642

Attn: Colleen Donlin-Smith, MA, CCRC
Sr. Health Project Coordinator

(585) 275-7680 or (585) 275-6372

(585) 273.1255 fax

FieldsCenter@urmc.rochester.edu